Company profile

Batten Disease Family Association

Together we will make a difference

Industry
Non-profit Organizations
Employees
10
Headquarters
Shipley
Office locations
1

Batten Disease Family Association company summary

Batten Disease Family Association is a company in the Non-profit Organizations industry, headquartered in Shipley. On LinkedIn the company has around 10 employees. Its listed specialties include Education, Family Support, Research Funding.

What technology does Batten Disease Family Association use?

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About Batten Disease Family Association

The Batten Disease Family Association CIO (BDFA) was formed in 1998 by a small group of parents of children with Batten Disease. The BDFA gained charity status in 2001, then became a charitable incorporated organisation (CIO) in 2024. The BDFA is committed to: Preserve and protect the health and promote the welfare of persons affected by all types of Neuronal Ceroid Lipofuscinosis (NCL) commonly known as Batten Disease To advance the education of professionals, carers and the general public on the subject of Batten Disease and its implications for the family To promote research into the management of Batten disease and to publish the useful results thereof and to support organisations promoting research into Batten disease.

Specialties

EducationFamily SupportResearch Funding

Where is Batten Disease Family Association located?

Batten Disease Family Association lists 1 location.

Shipley, BD18 9GE, GBHQ
PO Box 379

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Frequently asked questions about Batten Disease Family Association

What does Batten Disease Family Association do?

The Batten Disease Family Association CIO (BDFA) was formed in 1998 by a small group of parents of children with Batten Disease. The BDFA gained charity status in 2001, then became a charitable incorporated organisation (CIO) in 2024. The BDFA is committed to: Preserve and protect the health and promote the welfare of persons affected by all types of Neuronal Ceroid Lipofuscinosis (NCL) commonly known as Batten Disease To advance the education of professionals, carers and the general public on the subject of Batten Disease and its implications for the family To promote research into the management of Batten disease and to publish the useful results thereof and to support organisations promoting research into Batten disease.

How many employees does Batten Disease Family Association have?

Batten Disease Family Association has around 10 employees on LinkedIn.

Where is Batten Disease Family Association headquartered?

Batten Disease Family Association is headquartered in Shipley.

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