Company profile

EURORDIS-Rare Diseases Europe

Working across borders and diseases to improve the lives of all people living with rare diseases.

Industry
Non-profit Organizations
Employees
90
Headquarters
Paris, Paris
Founded
1997
LinkedIn followers
28,897
Office locations
1

EURORDIS-Rare Diseases Europe company summary

EURORDIS-Rare Diseases Europe is a company in the Non-profit Organizations industry, headquartered in Paris, Paris, founded in 1997. On LinkedIn the company has around 90 employees and 28,897 followers. Its listed specialties include patient empowerment, European networking of patients, advocacy, policy development, orphan drug policy.

What technology does EURORDIS-Rare Diseases Europe use?

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About EURORDIS-Rare Diseases Europe

EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1,000 rare disease patient organisations from more than 70 countries that work together to improve the lives of all people living with rare diseases in Europe. By connecting and mobilising all stakeholders from within and outside the rare disease community, EURORDIS strengthens the voice of people living with rare diseases and shapes research, policies and services. Our vision is a world where all people living with a rare disease can have longer and better lives and can achieve their full potential, in a society that values their well-being and leaves no-one behind. To achieve their full potential, people living with a rare disease need to be: - recognised as equal citizens with their rights fully respected - diagnosed timely and accurately - supported by state-of-the-art medical and social care, or cured - included in society in all aspects of life and enabled to live independently Our mission is to work across borders and diseases to improve the lives of all people living with rare diseases.

Specialties

patient empowermentEuropean networking of patientsadvocacypolicy developmentorphan drug policyRare Diseases

Where is EURORDIS-Rare Diseases Europe located?

EURORDIS-Rare Diseases Europe lists 1 location.

Paris, Paris, FRHQ
96 Rue Didot

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Frequently asked questions about EURORDIS-Rare Diseases Europe

What does EURORDIS-Rare Diseases Europe do?

EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1,000 rare disease patient organisations from more than 70 countries that work together to improve the lives of all people living with rare diseases in Europe. By connecting and mobilising all stakeholders from within and outside the rare disease community, EURORDIS strengthens the voice of people living with rare diseases and shapes research, policies and services. Our vision is a world where all people living with a rare disease can have longer and better lives and can achieve their full potential, in a society that values their well-being and leaves no-one behind. To achieve their full potential, people living with a rare disease need to be: - recognised as equal citizens with their rights fully respected - diagnosed timely and accurately - supported by state-of-the-art medical and social care, or cured - included in society in all aspects of life and enabled to live independently Our mission is to work across borders and diseases to improve the lives of all people living with rare diseases.

How many employees does EURORDIS-Rare Diseases Europe have?

EURORDIS-Rare Diseases Europe has around 90 employees on LinkedIn.

Where is EURORDIS-Rare Diseases Europe headquartered?

EURORDIS-Rare Diseases Europe is headquartered in Paris, Paris.

When was EURORDIS-Rare Diseases Europe founded?

EURORDIS-Rare Diseases Europe was founded in 1997.

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