Company profile

National Organization for Rare Disorders

Alone we are rare. Together we are strong.®

Industry
Non-profit Organizations
Employees
196
Headquarters
Danbury, CT
Founded
1983
LinkedIn followers
46,164
Office locations
3

National Organization for Rare Disorders company summary

National Organization for Rare Disorders is a company in the Non-profit Organizations industry, headquartered in Danbury, CT, founded in 1983. On LinkedIn the company has around 196 employees and 46,164 followers. The company lists 3 office locations. Its listed specialties include rare diseases, patient assistance, patient support, rare disease information, advocacy.

What technology does National Organization for Rare Disorders use?

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About National Organization for Rare Disorders

The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases and the organizations that serve them. NORD, along with its 350+ patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient support services. NORD serves all stakeholders in the rare disease community, including patients and their families, patient organizations, researchers, medical professionals, medical students, and companies developing orphan products. NORD also works closely with many government agencies, most notably the National Institutes of Health (NIH) and the Food and Drug Administration (FDA). All NORD programs are focused on one ultimate goal: to improve the lives of individuals and families affected by rare diseases. NORD is the official U.S. sponsor of Rare Disease Day, an international observance day held on the last day of February each year. Its goals are to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. To learn more, visit rarediseases.org/rare-disease-day. To learn more, please visit the NORD website at www.rarediseases.org. You can also follow NORD on X at @RareDiseases.

Specialties

rare diseasespatient assistancepatient supportrare disease informationadvocacyinformation for medical professionalsresearchonline communitiesorphan diseases

Where is National Organization for Rare Disorders located?

National Organization for Rare Disorders lists 3 office locations.

Danbury, CT, USHQ
55 Kenosia Avenue
Quincy, MA, US
1900 Crown Colony Drive, 4th floor
Washington, DC, US
1779 Massachusetts Avenue

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Frequently asked questions about National Organization for Rare Disorders

What does National Organization for Rare Disorders do?

The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases and the organizations that serve them. NORD, along with its 350+ patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient support services. NORD serves all stakeholders in the rare disease community, including patients and their families, patient organizations, researchers, medical professionals, medical students, and companies developing orphan products. NORD also works closely with many government agencies, most notably the National Institutes of Health (NIH) and the Food and Drug Administration (FDA). All NORD programs are focused on one ultimate goal: to improve the lives of individuals and families affected by rare diseases. NORD is the official U.S. sponsor of Rare Disease Day, an international observance day held on the last day of February each year. Its goals are to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. To learn more, visit rarediseases.org/rare-disease-day. To learn more, please visit the NORD website at www.rarediseases.org. You can also follow NORD on X at @RareDiseases.

How many employees does National Organization for Rare Disorders have?

National Organization for Rare Disorders has around 196 employees on LinkedIn.

Where is National Organization for Rare Disorders headquartered?

National Organization for Rare Disorders is headquartered in Danbury, CT.

Where does National Organization for Rare Disorders have offices?

National Organization for Rare Disorders lists 3 office locations, including Danbury, CT, US; Quincy, MA, US; Washington, DC, US.

When was National Organization for Rare Disorders founded?

National Organization for Rare Disorders was founded in 1983.

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